tag:blogger.com,1999:blog-6288426.post7413488747761754252..comments2023-06-27T04:59:57.551-07:00Comments on David T. Anderson: NP 001dtahttp://www.blogger.com/profile/01721544793596701966noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6288426.post-70276034934991539842011-08-21T19:39:37.682-07:002011-08-21T19:39:37.682-07:00Just found your blog again. Thought I had bookmark...Just found your blog again. Thought I had bookmarked it.<br /><br />This sounds so promising!When will you know if you're accepted into the trial. <br /><br />Do you remember my friend Barbara from NYC who, at 48, was dx'd with lung cancer already metastasized to her brain? She got compassionate entry into the Iressa chemo study. She didn't make it, but they gave her 3-6 months upon original dx, and she lived for 5 years.<br /><br />Thinking of you often,<br />Hugs<br />SusanSeattleSusieQhttps://www.blogger.com/profile/05616760027816884206noreply@blogger.comtag:blogger.com,1999:blog-6288426.post-12926838194782229002011-08-03T12:44:05.493-07:002011-08-03T12:44:05.493-07:00@tarnett I'm sorry your father was denied. The...@tarnett I'm sorry your father was denied. There is hope that this drug will move through Phase 2 quickly and the entry requirements would change for Phase 3.<br /><br />As to going to China, I'm due to write up a retrospective -- which I will begin work on, but the short answer is: if your father can get around without a chair, it may be helpful. I found it to be while I was there. You should plan to be there for at least 3 months -- and ideally not alone.<br /><br />However if you have TCM practitioners in your area I would consider starting there first.<br /><br />I have a lot more thoughts I will post in the retrospective, feel free to contact me directly at alsinfo@davidtanderson.com if you have any specific questions.<br /><br />@Andy thanks for the good energies and the info. It is an exciting trial and I agree about the service and treatment benefits. I wish you all the best in your treatments and encourage you to remain positive.dtahttps://www.blogger.com/profile/01721544793596701966noreply@blogger.comtag:blogger.com,1999:blog-6288426.post-90343800921760010522011-08-03T03:18:31.380-07:002011-08-03T03:18:31.380-07:00This is a very exciting clinical trial. On Friday ...This is a very exciting clinical trial. On Friday I am going for an interview with the doctor in charge of the NP001 phase 2 clinical trial at Columbia Presbyterian Hospital in New York City.<br />I was diagnosed on December 2, 2010. My condition is limb onset ALS, which is progressing quite rapidly. Today I am going for my next to last clinical visit for the trial of another molecule based drug- NOGO-a. I believe it is a great thing to participate in a clinical trial. And there are altruistic satisfactions-you are playing an active role in the fight against the disease, hope that potentially you may be helped by the drug and, most importantly, you receive a lot more hands-on treatment than you would otherwise.<br />I found out about NP001 after following some links from Dudley Clendinen's article in the New York Times, "The good short life" July 8, 2011. (http://www.nytimes.com/2011/07/10/opinion/sunday/10als.html?pagewanted=all). This led me to a posting comment by Ben Harris, an ALS patient who is already participating in the phase 2 trial of NP001. His remarks are provocative and incredibly hopeful ("…After only one day of receiving the drug I noticed significant improvements in my condition…").<br />David, I wish you all the best and hope that you are tested with the high dose.<br />Andy Heimer, Paterson, New Jersey.Andy Heimerhttps://www.blogger.com/profile/06552692324245345560noreply@blogger.comtag:blogger.com,1999:blog-6288426.post-24755827316448457312011-08-02T05:56:40.752-07:002011-08-02T05:56:40.752-07:00My father recently was denied for this trial, as h...My father recently was denied for this trial, as his lung function was only at 50%. Would you recommend going to china and/or receiving medicine? Thanks!tarnetthttps://www.blogger.com/profile/09452957740404313511noreply@blogger.com